An independent charity for people with learning disabilities

Spring 26 Newsletter

Hi everybody and welcome to our Spring newsletter.
 

It is lovely to see the days getting longer and the warmth returning. It won’t be long before we start our now annual Spring sponsored walk at Ladywell Fields. Do support us with a donation if you can – details will follow on our social media channels soon.

We are delighted to announce that we have secured a new 3-year grant as part of Lewisham Council’s main grant programme. Amongst other things, we will be setting up a new Lewisham forum for organisations that work with people with learning disabilities. The aim is to share knowledge, support each other to develop and to have a stronger voice together. We’re very much looking forward to working on this over the next three years.

We’ve just completed some work on Easy Read information with the UK Health Security Agency and our friends at Learning Disability England. You can read more about that below. I was struck these last few days by how important a role they have in ensuring everyone has the right information. The recent meningitis outbreak in Kent really brought home how everyone needs information they can understand to keep themselves safe.

If you receive any letters about moving to Universal Credit do get in touch as we can help you. Read more below about that and other changes that might affect your benefits.

Have you ever visited a hospice? Read Jan’s story about visiting St Christopher’s below, a real eye opener into everyday fears and worries.

Finally, as we head towards the May elections, we are working to encourage all those supporting people with learning disabilities to help them register to vote and use their vote. People with learning disabilities have the same voting rights as everyone else!

Marsh
Marsh Stitchman, Director

Self-Advocacy

• Projects

Question Time

After the success of last year’s first ever Question Time for people with learning disabilities in Lewisham, we held another this year. 28 people with learning disabilities attended and asked questions to our panel. The panel included Vicky Foxcroft MP, Ellie Reeves MP and Kenny Gregory, Director of Adult Integrated Commissioning at Lewisham Council. People asked them about transport, health inequalities for people with learning disabilities, the cost of living, benefit cuts and Donald Trump!

After one hour, our reps joined the panel and answered questions from people with learning disabilities that they represent. People asked questions about how to get travel passes, and asked the reps to campaign for freedom passes to be used on trains before 9:30am. People also asked about getting jobs, applying to be reps in the future or getting jobs in other places.

UK Health Security Agency

Last year, we did a piece of work with Learning Disability England and the UK Health Security Agency, where we wrote a report on how to create Easy Read for people with learning disabilities. This was important to us, because we saw in the pandemic how important it was for people with learning disabilities to get health information at the same time as everybody else. We want to stop people with learning disabilities dying sooner than other people, and this includes making sure they have the information they need to keep themselves safe.

The UK Health Security Agency asked us to do some more work with them this year, including another workshop where we gave feedback on the Easy Read they have made, and a video to help their staff make Easy Read. In the video, we shared why Easy Read is important, what works well in Easy Read, what to avoid, and how to do it! We are very happy that people who work at the UKHSA will learn how to make Easy Read straight from the people that use it.

People's Parliament - Extremism and Hate

We had our first People’s Parliament of the year on the 6th March, on extremism and hate. We’ve talked about this topic in our weekly zoom group and monthly big group, but we have never held a People’s Parliament on it. People felt that because extremism is in the news and seems to be in our streets now more than ever, we should talk about it.

Meetra from the Lewisham Refugee and Migrant Network came to talk to us about Lewisham’s borough of sanctuary and how we can support migrants and refugees in our community. Alex from South East London’s Prevent team talked to us about what extremism means, what Prevent does to stop terrorism and how we can keep ourselves and the people around us safe.

Meetra (Lewisham Refugee & Migrant Network)
Alex (Prevent)

We held 3 workshops for people to share their views. One was on “radicalisation and prevent”. We talked about how and why extremist groups target autistic people to recruit to their groups, and how to say safe. We had another group on the media, how it can make hate worse and what responsibility it has. The last group was on “freedom of speech vs hate speech”, and people shared their views on what the difference is and why it is important.

We will publish the report for this People’s Parliament in May, so please look out for it to hear our views on this topic.

• LSU Regular Events •

BIG GROUP

We meet every month, on the last Wednesday of the month at 10:30am-12pm at the

Our next meetings will be on 29 April; 27 May; 24 June

ZOOM GROUP

We meet on Tuesdays at 4pm-5pm on Zoom, and talk about topics like health, hobbies, and the news. 

MUSIC GROUP

Join our popular Music Group on Fridays at 5pm-6:30pm where you can share your favourite songs and what they mean to you!

If you would like to join any of our groups email info@lsup.org.uk

or call 020 8692 1862 for more information.

 

1-2-1 Advocacy

Finance Advocacy

It’s that time of year when people will be getting letters about rent, Council Tax and PIP money increases…

If you don’t understand the letters or are not sure what to do, get in touch with Michelle.

Especially if it’s about your rent changing and it’s going up. Lewisham Speaking Up can help you get in touch with Universal Credit or the Housing Benefit Team to find out how to sort out any problems.

PIP rates are also going up from April 6th 2026.

This means that people will be getting more PIP money depending on what their award is:

    • Daily Living Component
      • Standard Rate: will be £76.70 (up from £73.90)
      • Enhanced Rate: will be £114.60 (up from £110.40)
    • Mobility Component
      • Standard Rate: will be £30.30 (up from £29.20)
      • Enhanced Rate: will be £80.00 (up from £77.05) 

Did you know? Care Charges are changing!

From 6 April 2026, the government is increasing the Minimum Income Guarantee.

That means you will get to keep more of your benefits before you pay for your care and support. Overall, it will cost you less.

This rise makes sure that people who use social care keep more of their income. It will be worth roughly £400–£510 more every year. Hopefully this will help a lot of people with living costs like food and utility bills.

Universal Credit information workshops

In the last Newsletter I spoke about running workshops about Universal Credit to help people with learning disabilities build their knowledge about UC. I’ll help to answer questions like:

  • What is Universal Credit?
  • Why did we have to change benefits?
  • How do we use a UC journal?
  • What is a UC statement?

I will be announcing dates for the workshops for the end of April and beginning of May – keep an eye out!

Ring the Lewisham Speaking Up Office if you’re interested in coming along.

Michelle
Michelle

Community Advocacy

St Christopher’s Hospice

Hi guys! As you know I normally discuss 1-2-1 cases, but I’d like to change the theme and share my experience in attending St Christopher’s Hospice in Sydenham.

My colleague Ellie invited me to visit St Christopher’s Hospice with her and the Parliament Reps. My first reaction? “No thank you!” and the second was me imagining bed patients preparing to say their last goodbyes. Nevertheless, instead of firmly declining the invitation, I heard myself say aloud “I’d like to attend. This is a new experience and knowledge”. As the day drew closer, I had a million excuses of why I shouldn’t go: I have a cold; I’m having problems with my knees; I have to attend an urgent appointment. I thought, I’ll simply email Ellie explaining why. She will understand; they will all understand.

The day dawned, and I told myself face up to your fears. When we arrived my pessimism, anxiety and nervousness dissolved. I looked at the front of the building and felt a warmth and calmness about the environment. We were introduced to our host, Esther, who was cheerful and keen to know all our names. As we followed her through the building, I observed how peaceful and weightless the walk was, as if I had left all my burdens outside and was entering into a domain of tranquillity. I was enjoying the architecture, the large spaces, the flood of light from outside, the soft neutral colours inside. I observed the artwork that had embedded itself in various forms and in every space and corner, equally balanced by the right amount of clear space.

When we reached the meeting room, after introductions and hellos were exchanged, Esther, a Community Connector, introduced herself and the timetable that she had prepared for the day. She confirmed she would explain what they did at the hospice. I now prepared myself to hear her lectures about dying and death. However, the message was don’t be too consumed about your mortality that you forget to live your life. The residents who came here had complex health needs, but despite that they were able to enjoy a chat with friends and loved ones, either in the spacious restaurant or the gardens. There was a range of facilities where people could have their feet or hands massaged or nails done. There was a hairdresser salon and a mini gym. Also, a beautiful space that represented a church, with stained glass windows that allowed colourful rays of light on a mosaic art on walls. My interpretation of the art was gentle sea waves with fishes swimming in the same direction, while other people interpreted it as leaves drifting from branches of trees. In this space you were allowed to light a candle and say a prayer, meditate, write a poem in the book, or express your thoughts about St Christopher’s Hospice.

One member of staff informed me that when spring arrives the patients can participate in horticulture sessions. Some had already expressed their ideas of planting herbs, shrubs and flowers.

The staff were friendly, cheerful, patient and understanding and there was agreement that it was important to have some sense of humour as a coping mechanism. I admired their spirit and tenacity in doing what I perceived as a very difficult and emotional job.

The theme at the hospice was to live well and die respectfully.  That, even when we are provided with a shorter life span than anticipated, depending on the level of one’s ability and capacity, to continue to participate in life.  And when the time comes, have a dignified transition into our next journey, surrounded by our loved ones whether they be family, friends or our pets.

Jan
Jan

• Upcoming Events •

PEOPLE’S PARLIAMENT

Please diarise Friday 5 June from 10.30 – 3.00 (Catford Civic Suite) for our next People’s Parliament.

Email Ellie at ellie.spirrett@lsup.org.uk or phone 020 8692 1862

Contact us

General email:

Referral email:

Referral forms can be found here

Phone:

020 8692 1862

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